Happy New Year

Image Description: A white flower is half way dried, laying flat on a wooden kitchen table top.

I’ve been quiet—2025 hasn’t started as smoothly as I had hoped. There’s something about a new year that feels heavier when you’re living with a progressive disease. It’s not just the usual hopes and resolutions; it’s the quiet, unspoken worry about what might change—what I might lose. The calendar flipping forward can feel like both a fresh start and a ticking clock, each day a reminder that time moves on, even as my abilities fade. The thought of continuing an endless fight feels daunting. Living with a shifting 'normal' is exhausting, even in its simplest moments. The weight of the world and the pressure I put on myself can feel overwhelming. I know I should celebrate being here, but sometimes it’s hard when surviving feels like all I’ve been doing.

Still, I’m grateful. Life is unpredictable and it moves fast. Last year, I embraced as many ‘firsts’ as possible, driven by how LGMD continues to shape my world. This year, I’m holding onto that same goal. My world feels simpler now—not because it’s easy, but because this unique journey has uncovered the beauty in not taking anything for granted. That’s the silver lining I’m learning to cherish, one day at a time. 

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